Thursday, September 25, 2008

My baby

So a little background information... when Sami was 1-month old, she was running a 103 temp which happened to be the day of her check-up. After some tests and an hour or so in the doc's office, she was admitted to the hospital and put on antibiotics for 3 days. During this time, we found out that she had vesicoureteral reflux in Lehman's terms it's urinary reflux. You can google it for more info, but the just of it is that when she pees, not all the urine exits the body, some of it goes back up the ureters and can cause UTIs and possibly kidney damage. So since she was a month old we've had to have her on a daily antibiotic and have regular ultrasounds on her kidneys and bladder as well as VCUGs (a test done by injecting a dye through a catheter and then Sami lays on a table and pees as an x-ray machine records where the urine is going)... not a fun procedure by any means.

Well on Monday we had Sami's check-up at Children's with her urologist to see how things are going since she was last tested in Dec. The good news is that her kidneys and bladder are in perfect form and the reflux on her right side was gone. The bad news is that the reflux on her left side is not any better then it was in Dec. After discussing our options with her doctor, he recommended having a procedure done that's called deflux. The recommendation is based on Sami not getting her antibiotic every day (which he agreed with me that based on studies done, there's not enough evidence to know if there's a long term affect from daily antibiotics or if they do much to prevent UTIs), how terrified and miserable she is getting the VCUG done and the fact that every time she starts to run a fever, in the back of our minds we always worry it's her reflux. So he told us to think about it and his office would give us a follow-up call to see what we've decided. Now we've seen this doctor 3 times since Sami was diagnosed and he is great with her and us and we trust him completely, so as soon as we got in the car I looked at Jason and asked what he wanted to do and right away he said "Let's do the procedure" which was exactly what I was thinking too.

So rather then wait for the doctor to call us, I called his office on Tuesday and Sami's procedure is scheduled for Wed, Nov 5th at Children's Hospital in Minneapolis. They're sending me more information, but I know we have to be there at 8am and her procedure is scheduled for 9:30am and should only last about 30 minutes. We will however be there for half a day due to anesthesia since she can not move at all during the procedure. It will definitely be a trying day, but I put my faith in God and Dr. Aliabadi that my baby will be just fine. And he assures us that by the next day, she'll be back to herself. Also by doing this procedure, we will no longer have to have the VCUGs done and there will be no need to cut her open like they sometimes have to when the child gets older.

Then yesterday I had to take Sami to her regular doctor for her 18-month check-up and she is doing awesome. She's developmental at a 2-year old level and socially at a 2 1/2 year old level, which the doctor said she looks like a 2-year old so I guess it's all in line. She's also at the 92% level for head and height and 97% for weight... so even though she's big, she's all in line, we'd only worry if the numbers were far apart from each other. So where did my baby go?

1 comment:

Anonymous said...

HEY! If you go to my blog on the top left side of the page is a little grey box that says "sometime blog" (Cant' remember the name)...anyway, click on that and tool around and you will find that you can make a really cool blog design, that is where I got mine...

We are praying for you guys and Sami!